An Ecstatic Announcement

Eleven years ago today, I stepped off a curb and into a crosswalk. I was hit by a car, bounced into a truck, and sustained a complex and serious brain injury that took years to settle to the point I could manage it, and by which I am still affected to this day.

This morning, eleven years to the day later, I learned that I will receive a $25,000 Canada Council for the Arts grant to write Crossing the Street — the memoir born in that life-changing moment. And this grant will, fittingly, be life-changing for me.

I am beyond grateful to the Canada Council for this opportunity and eager to focus on this project and see it to fruition. At a point in my life where I’m too functional to be disabled, and too dysfunctional to be “able”, there is no way I have been able to work on this book while trying to be employed AND manage my illness. This is the only way this book could possibly be written, and my emotions are still super-bouncing all over the place, landing on “gratitude” and “awe” most often.

For every person who sits on the side of the bed, trying to figure out what’s wrong, when they can’t put their pants on after their shoes, or hears the wrong words come out of their own mouth, or feels dizzy and nauseated at the grocery store because the lights, the sounds of the carts, and the number of colours and letters in the soup aisle are just Too Much At Once… This book is for you. This book is for the thousands of people who sustain traumatic brain injuries every year.

I am writing the book I wish someone could have handed to me and Doug eleven years ago, with the reassuring words, “No, Karen, you aren’t going crazy,” and “Doug, this is what the world looks like to Karen right now.”
Brain injury is something you don’t “get” until you get one. I’m going to show you what it’s like without you having to incur the pain.

Thank you to everyone who has been, and continues to be, in my corner. I’m going to make you proud.

And now, for the first time … drum roll please …

* I acknowledge the support of the Canada Council for the Arts! *

A Timely Reminder

Scrolling through Facebook, I see those memory posts pop up.  Sometimes they make me smile.  Sometimes they make me wistful. 

This one stopped me in my tracks.

I still remember that neurocognitive assessment — the first one I’d ever had. Two days of putting my injured brain through its paces, having to push it to the point of failure so we would know what was impaired, and to what extent.

It was as difficult emotionally as it was mentally. But even on the drive home — feeling nauseous, dizzy, and with the left side of my head pulsing like it was visibly “breathing” — I was hopeful. So, so hopeful that the rehab centre was going to help me.

And they did.

Hey, Brain. Sometimes I only notice the continued deficits. But this Facebook Memory reminded me: You’ve come a long way, baby.  ❤️


This post was created as part of Two Writing Teachers’ Slice of Life Challenge

You can view other writers’ contributions via the comments here.

Of Squirrels and Bees

Attachment.pngOne of the most difficult things about having a concussion is that unless you’re in the club and have had your cranial computer go haywire, it’s not something that’s easily understood. Questionable Bonus: You usually “look normal.“

It’s not like a broken leg, where people see that it must be serious, and they sign the cast as a sign of support. And a broken bone is also common enough that friends and family are familiar with your experience. Well, seeing as I’ve become something of a reluctant expert in this field — four diagnosed brain injuries, likely six in total — I thought I may as well seize this teachable moment and make something good out of it all.

Trying to think and interact with people these days is kind of like trying to concentrate with a head full of squirrels and bees.

Let’s start with the bees.

Imagine that you are standing near a bee hive, close enough to hear and nearly feel the vibration of all those tiny wings. The buzzing is a low hum — not enough to drown out anything, but enough to be distracting. So you have to work extra hard to concentrate on what you’re doing, because that low hum is taking up some of your brain bandwidth. It’s tiring, and you have to work at it, but you can mostly function around it.

The squirrels are a different story.

I quite like squirrels, but not in my head. These pesky cerebellum rodents usually turn up when I’m talking. One of the areas hardest hit in my brain (pun probably intended) is my language centre, so often I say or type one word when I mean another that sort of sounds the same or has a distantly similar meaning. (For example, pictures when I mean worksheets.)

As a result of this ding to the word bank, if I get interrupted when speaking, it’s like I suddenly have squirrels ricocheting off the inside of my skull. Red squirrels! Grey squirrels! Flying squirrels! And I stand there with absolutely no idea of what I was saying, or what I was going to say next. It happens each and every time someone breaks into my communication stream, and then I inevitably feel stupid and frustrated as I try to recover. Intellectually, I know it’s not my fault, but emotionally it’s a hard default to set.

There really isn’t a way to fix the squirrels. You can say “Please don’t interrupt me,” but that attempt at squirrel sedation usually sounds like a reprimand (especially if you’re also trying to talk over the bees), and some people’s communication styles just don’t work that way.

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Healing from a concussion (mild traumatic brain injury) is exhausting. Each and every thing a human being does uses some form of brain activity. Taking a shower today knocked me on my butt and I had to sleep for two hours. (Write down each and every motion of your typical shower experience from deciding to take a shower until you are ready to walk out the door and you’ll see what I mean.)

For now, the squirrels and bees are settled down. I’m alone in a quiet room, and so my attention is focused solely on this screen and this keyboard. And it feels good to be writing — a balm for those moments when words pop out of my head like soap bubbles on thistles.